Empower Autism

Archive for the ‘Tough Questions’ Category

Adults, Autism, and Employment

Less than a third of adults with autism have regular employment.   There is a range of statistics regarding the exact rate (here and here and here), but whether the unemployment rate is 68% or 93%, it seems that many people who could potentially work are not working.

For comparative purposes, the US unemployment rate for all people with disabilities (who are non institutionalized) is around 14%, and the overall unemployment rate for the US is around 8%.

There are a lot more kids with an autism diagnosis than adults (because we recognize and diagnose it more now than we did 15 years ago),  and many of these kids receive some kind of special services in school and/or in the community.  However, most of those services end after high school.

As a society, we should want kids to be able to work, so that our tax dollars do not have to pay for them in the form of unemployment, prison, and institutional support.

The issue is:  We don’t actually know how to help people become employable. We have some ideas, but we have a pitiful amount of research in this area.

The largest support program for helping people with autism find work is Vocational Rehabilitation Services (usually known as VR). It is federally funded, and operated on a state level. In 2006, 3,397 people with autism were served by VR.

According to Autism Speaks, 500,000 kids with autism will become adults in the next decade.

Currently,  it costs VR about $30,ooo per year to support a person with autism at work.  For every dollar a person with autism makes in this program, it costs VR about $25.  This study says more.

It doesn’t seem like we can afford to support 500,000 more people in this way.

What can we do?  Here are a few resources from others:

An Autism Speaks list of ideas

A good collection of stats and ideas from Scott Standifer

Jobs4Autism

Specialisterne

Harvard Business School

Isn’t There a Pill for Autism?

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Almost every family I’ve worked with considers some kind of medication for their child with autism at some point. Lots of people end up getting prescribed some kind of medication. In fact, more than half the teens with autism that I know take at least one medication. They actually take some pretty serious stuff.

I’m distressed every time I go to look up research about meds for autism. It’s not that I think medication is bad–I’ve actually seen some kids really benefit from taking psychotropic/anti-psychotic meds – but I think the system and the background research is imprecise.

Consider the following:

  • Only 9 studies of psychotropic meds and autism were considered high-quality in a recent systematic review from 2000 – 2010.
  • These nine reviewed different medications and different age groups.
  • There are 9 million doctor visits in regard to “Off Label” use of anti-psychotic medications. That means the FDA hasn’t approved the med to be used in the way the doctor prescribed it.
  • Factors unrelated to clinical presentation seem highly associated with prescribing practices.That means factors like being in foster care or having medicaid increase your chances of being prescribed 3 or more anti-psychotics.
  • 18% of kids 0-2 years old (with autism, on medicaid) use a psychotropic medication.
  • The lack of research is distressing for families, and potentially harmful for kids.